OOOO I am here!!!

Hiya........Yes I have left it a long time again since I last blogged....

There is a reason for this and it may become apparent in this post, but basically I have been extremely peed off and frustrated and I didn't want this blog to become dark and gloomy like the weather, although I wanted to put all my thoughts and feelings in this for my own sake I would have ranted and spouted crap (no I don't usually!!!) and that wouldn't have been helpful to me or you reading this trying to understand this illness........

Anyhow I will begin with seeing my doctor on the 12th November, we gain chatted about things I explained that how for 2 weeks the injection gave me my old life back but had now evidently worn off, but he didn't want to increase my dosage, he wants to see how the next 2 injections go and then discuss that further....fair enough

I had my second B12 injection on 16th Nov and by the following day I felt great again, even tackled the spare bedroom....I was so looking forward to my birthday on 18th.....but no such luck, whilst I woke up feeling great after getting ready to go out I was sick......not sure of it was a 24 hrs bug or side effect form the injection...but I spent most of my birthday in bed......grrrrr.....

So the injection has not had the same effect as last time but it did have a positive effect initially......so I am not too dejected...it maybe a case that I need as I said before alot of B12 to improve my levels then an injection every month to maintain this....(even the nurse who injected me said that is usually the case) but I will just have to Wait for the next injection in 3 weeks now....

Then onwards to the 19th and my return the hospital, I saw a different neurologist this time not that i minded, she was really welcoming and nice, she did say to me that the MRI scan that I had on my brain (and I have been told about 3 times its all clear) show "Cholesterol Graining" on it...whatever that is, as she was unsure and will speak to the radiologist, I am not too worried though as I googled it and nothing came up, and she did say it could be something I was born with, and I know that a radiologist has looked at this already, although it does still make you worry slightly when you don't know for sure......

I spoke with her about the B12 and she wants to do YET MORE BLOOD!! to check my anitibodies and also to see if I have Coeliac Disease which is a reaction to some food products ie wheat...it maybe that I need a gluten free diet.....this maybe the reason that my B12 is low as having this is a malfunction in your stomach/intestine which does not absorb your food and therefore nutrients properly, it may also mean that I may have to have the camera down my throat!! The joys.........

That brings me back to my first paragraph of why I haven't blogged, I feel like I have been on a roundabout and just need it to stop, I am grateful for all the tests they are doing however just wish that they were all done in one go, everything seems to be taking too long......I will be going back to the hospital in 2 months but I will be on the phone before that for the blood results (I have the blood taken on Wednesday by the way as it was too late at the hospital on Thursday for it to be done)

However my life is just at a standstill at the minute....Do I need to quit work? Will I get better? etc etc....

I know i will get answers soon I just feel after 12 months I am no nearer to getting a confirmed diagnoses that I was in January.....so I have been quite down and miserable lately and I am better off alone when this happens as I will bite someones head of for no reason and that is not fair.....

I am just very lucky to have Ferg, my family and some very close friends to help pull me through times like this as it hard for me, but also hard for them to see the bubbly character that is usually me being on the floor....it is hard for them to deal with too......If it is that I have CFS/ME then fine I will accept that make changes in my life I need to a move on......if its something else then fine I will tackle that too.....its just the not knowing that really pees me off......

So that's that for now.....sorry its been longer than before but I hope you understand........

I need to cheer up soon as in 2 weeks my best friend gets wed at Gretna Green and I must be there and happy to.....but being around my friends will be a happy affair anyhow..............

Oh and I have Peter Kay tickets for next May too.....lets hope I'm well enough to go....I need some laughter

Today's picture is me and hubby...Love you Ferg.....xx


Take care guys and catch ya soon love LFB xxx

A Longgggggggg Week.......................

Hiya Guys.....

Well its been a long week for me this week......I am sad to report that I haven't been that great......

The tiredness and a few headaches have kicked back in again....although I'm used to that now, so I have been very limited in my activities and mainly rested.....

Again though I'm not sad about it, and I'm actually looking forward to my next injection on Monday 16th Nov, but before that I see my GP on Thursday and I will chat to him about the effects the B12 injection and hoping he may increase the dosage....I'm not holding out for that though as I see the neurologist on 19th of this month and I aim to get more joy then, as I am sure my GP will say lets just wait.....TOO predictable.....

The good thing though is that I am still resisting the urge to sleep in the day and therefore I am sleeping at night a solid 8-9 hours....It is important to keep that routine as it does help.....

I did get a little moody last week towards the end of the week, I think that's just the tiredness and everyone gets niggly when they are tired, maybe I show it more than others...That's the red-head coming out in me

The weekend my mood lifted not sure why, maybe it was due to all the Remembrance parades etc...Makes you realise that its important to concentrate on the life that you have rather than what you had before or what you don't have.....

Anyhow so I am 6 days away from what will hopefully be another injection of power in me.....good timing for my birthday next week to.........

Today's pic is me and my bestest Chumley....x

Take care and will blog soon......love LFB xx

Two fab weeks.......Now its wearing off....

Hiya guys.....

Well I'm sad to report that after two weeks of feeling great I am now on a downward spiral to tiredness and headaches again.........

I say I'm sad but I suppose I am not really THAT sad as it meant the the injection worked....okay so I need to the the doctor again soon.....in 11 days and my next injection is in 14 days.....well I've coped for 10 months or more like this so I'm sure I can cope a few more days.........

I am amazed at how much the injection did improve my life though....no tiredness...(just the normal day-day tiredness we all feel) no headaches it was great.....I am hoping that during my visits to the docs and the specialist within this month will see them agree with me and give me more regular doses of B12 to really get my levels up then have them monthly or so to maintain them.......

I will convince them it is the way to go.....and fingers crosses they will see that too...

I felt myself going downhill on friday in all honesty...and we had been invited to a party so I said to hubby lets go as I think the next two weeks are going to be rough for me, and it was really good to again go out.

I saw and chatted to lots of friends I haven't seen in a long time, which was really nice and had lots of nice comments come my way about this blog in particular.

I managed to stay until just after 11pm and when I go in I was shattered and to be honest yesterday and today I have spent in bed as I am as flat as a battery with a horrid headache that tablets just wont shift.....I even had a cat nap this afternoon which is something I haven't done i a while but nevermind that sometimes just cannot be helped..

So I will have to go careful this next two weeks and be conservative with my energy...that's ok though I get through it........

So just a short post today to give you the heads up of where I am.....

Today's picture is from Mablethorpe to...!

Thanks again for reading....See you all soon.....LFB xx