Hello All...........
Well I woke up yesterday morning and thought "To Hell with it" If CFS is going to make me tired and some days miserable and unwell I may as well do something that I enjoy, and if that means I have to spend a few days in bed to recover then so be it................and wouldn't it be better if the specialist saw me at my worse?!?!?
It is great having this attitude then you do the activity, and then when you are paying for it being unwell in bed you think....."Damn I shouldn't have been so silly" Grrrrrrrrr I hate the way this make you feel regardless of what you do!
Anyhow I went fishing yesterday, only about 5 steps of walking from the car to my chair was needed! I didn't feel too good for the 1st few hours then the sun started to shine and I perked up a little, then the fish came.............oh yes I ended up with a bagful, and very very very very achy arms!..... I caught 20+ fish and some nice carp, not massive the biggest was about 3lbs but I so enjoyed it!
So today came..............and my appointment at the hospital, we decided to leave at 9.15am my appointment was at 11am.......I know it was only a 20-25 minute journey to Stoke but never knowing what Monday morning traffic is like I would rather be early than late and then miss my precious appointment............Good decision was made as the hospital is huge!!!! And in all different parts after getting lost and driving in circles for a hour we finally found the place and I arrived at ten to 11! Phew........I had started to panic! They do not provide the best directions in the world!
So I saw a lady specialist not Dr.Ellis but all the same I didn't mind, she was very good and very professional and very thorough.
She sat and listened whilst I explained everything from the beginning and wrote everything down, she then went on to do some basic examinations, by testing my reflexes, looking into my eyes for a longish period, and she touched my feet! Now I hate anyone and I mean anyone touching my feet and she had hold of them for ages, this was the only time during my appointment I could have cried! I know she had to do it but for that long?!?!? OH MY GOD!!! I could have kicked her! But restrained myself!! She had better think again before doing that!
So after the chat and the feet touching she said she wanted a copy of my MRI scan not just the report, she wants to do some more blood tests (not sure if I have any left!) they couldn't be done today as I need to fast so these will now happen on Thursday at my GP, and also a lumbar puncture, which I will await an appointment for...(not looking forward to that) To diagnose ME/CFS then you must rule everything else out as there is not a test to say yes you have CFS, however I will undertake any test as it is process of elimination and peace of mind as some days when I am feeling really bad you do think the worst!
The Neurologist (as I cannot remember her name sorry!) will also once these tests are done is requesting I go to physio to do "Grading", she said this was about gradually building myself up to being able to do more, so I am looking forward to that and like I said I will do anything! If you don't help yourself no-one can help you I believe.
Ohhhhhh and also today whilst I was out I went to see me best bud! I love going to my Chumley's for a chat and beverage...........I am going to try and visit her every week now, as sometimes even before I was ill I was such a crap visitor of friends but they are important especially true friends and that's what she and her family are, we have such good times together..............today's pic is me and my chumley!!! Luv ya loads!
So two very very long days have been had, and needless to say as I write this my eyes are very heavy and I am sleepy, but I will try and hang on until at least 8-9 o'clock tonight so I can then sleep through and hopefully feel a little better, although I am so so happy at the minute, because the specialist believed me and didn't palm me off and is taking some positive steps with me and I go out and about a little
Well here's to looking forward guy's
Love ya..........Ginge xxx
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